Strange Boat - Organ Donation Awareness


Noreen's story

Hi, I have Chronic Renal Failure due to Polycystic Kidney Disease and I am on CAPD Dialysis since September 2011.

In this diary, I will let you know how I get on with dialysis and how I cope with the many highs and lows along the way. I am currently on the transplant list and waiting on that "miracle" phone call with the gift of life from Beaumont Hospital, Dublin.

I decided to set up because I know when I was told I had to start dialysis, I had so many questions, I felt I had no one to ask.  And while the Nurses were very good to me and while I was able to ask them any question, I always went home and had more questions.  Believe me, I am still learning and I still have many questions.

I should say at this stage, that I owe a huge degree of gratitude to the CAPD Nurses in CUH, who thought me how to do dialysis and gave me the courage and confidence to do it myself. I would also like to thank my Consultant. They were so supportive and just knew the right things to say and keep me calm.  I will be forever grateful to them and will never forget this kindness.

I'm hoping that my journey and experience with kidney disease and the things I learn along the way, will be of help to someone else.

My Dad also has Kidney Disease and has battled with it for the last 30 years.  Has had 2 transplants and is waiting on his 3rd.  When I see his courage and determination, that is, without a doubt, what keeps me going.

By all means don't hesitate to ask me any questions or leave any comments you may have.

If you would like to leave a comment but not on my home page please email me =

Thanks for listening.......






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